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Loie’s Disease A Book About Leukodystrophy

SKU: 9781665715683

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Additional information

Full Title

Loie\'s Disease A Book About Leukodystrophy

Author(s)

Maria Kefalas

Edition
ISBN

9781665715683, 9781665715676

Publisher

Archway Publishing

Format

PDF and EPUB

Description

Leukodystrophy is a life-limiting neurological disorder that can affect both children and adults.

In an illustrated story based on her conversations with her children after their sister, Cal, was diagnosed with leukodystrophy, Maria Kefalas delivers a simple and powerful explanation from a child’s point of view that explains the workings of the brain, what a diagnosis means, and how to face the challenge as a family.

“This is a beautiful book that delivers a powerfully simple, no nonsense explanation of leukodystrophy … it reminds us that every single child needs and responds to our love and kindness.”
Rebecca Brenner, former teacher